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Community Initiatives HIPAA Notice of Privacy Practices

THIS NOTICE DESCRIBES HOW YOUR PROTECTED HEALTH INFORMATION (“PHI”) MAY BE USED AND DISCLOSED, AS WELL AS YOUR RIGHTS RELATED TO YOUR PHI. PLEASE REVIEW THIS NOTICE CAREFULLY.

THIS HIPAA NOTICE OF PRIVACY PRACTICES IS EFFECTIVE AS OF 2/1/2026.

Community Initiatives (also referred to as “us” or “we”) is a fiscal sponsor of projects that engage in charitable and/or educational activities (the “Fiscally Sponsored Projects”, “FSPs”, or “Projects”).

Projects operate under Community Initiatives oversight and benefit from our tax-exempt status. We take on all legal and fiduciary responsibilities for the Projects. You can learn more about what fiscal sponsorship is here.

Community Initiatives is a California nonprofit public benefit corporation that is recognized as tax-exempt under federal and state law. Each Project engages in distinct charitable and/or educational activities as programs of and overseen by Community Initiatives. As such, while Community Initiatives itself collects no PHI, some of our Projects are covered by the Health Insurance Portability and Accountability Act of 1996, as amended by the Health Information Technology for Economic and Clinical Health Act of 2009 (collectively referred to as “HIPAA”).

For a summary of the components of Community Initiatives that are covered by HIPAA, please see Community Initiatives’ HIPAA Hybrid Designation Policy. Please also note this notice only applies to our processing of PHI.  For our privacy practices generally, please see our Privacy Policy here.

1. What is "Protected Health Information"?

Protected health information or PHI means information that is created or received  by Community Initiatives, or a Project, and relates to the past, present, or future physical or mental health condition of an individual; the provision of health care to an individual; or the past, present, or future  payment for the provision of health care to an individual; and that identifies the individual or for which there is a reasonable basis to believe the information can be used to identify the individual. PHI includes information of persons living or deceased.

Some examples of PHI are:

  • An individual’s medical record number;
  • An individual’s demographic information (e.g. address, telephone number);
  • Information doctors, nurses and other health care providers put in an individual’s medical record;
  • Conversations a provider has about an individual’s care or treatment with nurses and others;
  • Billing information about an individual at a clinic or similar facility;
  • Any PHI that can lead to the identity of an individual or the contents of the information can be used to make a reasonable assumption as to the identity of the individual.

If your PHI is de-identified in accordance with HIPAA standards, it is no longer PHI.

For a further summary of how we use information collected through this website, please see the detailed list of categories of Personal Information and how we use it below.

2. Summary of Your Rights and Choices, Our Uses and Disclosures of PHI

The following is a high-level summary of the rights HIPAA provides you, as well as how Community Initiatives and our Projects’ use and disclosure of your PHI. A more detailed summary of how you may exercise these rights may be found later in this Notice.

Your Rights

  • Get a copy of your paper or electronic medical record;
  • Correct your paper or electronic medical record;
  • Request confidential communication;
  • Ask us to limit the PHI we share;
  • Get a list of those with whom we’ve shared your PHI;
  • Get a copy of this privacy notice;
  • Choose someone to act for you; and/or
  • File a complaint if you believe your privacy rights have been violated.

Your Choices

You have some choices in the way that we use and share PHI including:

  • Tell family and friends about your condition;
  • Provide disaster relief;
  • Include you in a hospital directory;
  • Provide mental health care;
  • Authorize us to market our services and sell your PHI if that were necessary; and/or
  • Raise funds.

Our Uses and Disclosures

We may use and share your PHI as we:

  • Treat you;
  • Run our organization;
  • Bill for your services;
  • Help with public health and safety issues;
  • Do research;
  • Comply with the law;
  • Respond to organ and tissue donation requests;
  • Work with a medical examiner or funeral director;
  • Address workers’ compensation, law enforcement, and other government requests; and/or
  • Respond to lawsuits and legal actions.

3. Your Rights

When it comes to your PHI, you have certain rights. This section explains your rights and some of our responsibilities to help you.

Get an electronic or paper copy of your medical record

  • You can ask to see or get an electronic or paper copy of your medical record and other PHI we have about you.
  • We will provide a copy or a summary of your PHI, usually within 30 days of your request. We may charge a reasonable, cost-based fee.
  • To make a request for access to your PHI you may use this webform, following the instructions on the webform for other means of submission, or request a physical form in person then submit it using the instructions on the form.

Ask us to amend/correct your medical record

  • You can ask us to amend/correct PHI about you that you think is incorrect or incomplete.
  • We may say “no” to your request, but we’ll tell you why in writing within 60 days.
  • To make a request for amendment to PHI you may use this webform, following the instructions on the webform for other means of submission, or request a physical form in person then submit it using the instructions on the form.

Request alternative means of communications

  • You can ask us to contact you in a specific way (for example, home or office phone) or to send mail to a different address.
  • We will say “yes” to all reasonable requests, as determined in Community Initiative’s sole discretion. We may charge a reasonable, cost-based fee.
  • To make a request for alternative means of communication you may use this webform, following the instructions on the webform for other means of submission, or request a physical form in person then submit it using the instructions on the form.

Ask us to limit what we use or share

  • You can ask us not to use or share certain PHI for treatment, payment, or our operations. We will review and consider your request. We are not required to agree to your request, and we may say “no” if it would affect your care.
  • If you pay for a service or health care item out-of-pocket in full, you can ask us not to share that PHI for the purpose of payment or our operations with your health insurer. We will say “yes” unless a law requires us to share that PHI.
  • To make a request to limit what PHI we use or share you may use this webform, following the instructions on the webform for other means of submission, or request a physical form in person then submit it using the instructions on the form.

Get a list of those with whom we’ve shared PHI (an accounting)

  • You can ask for a list (an accounting) of the times we’ve shared your PHI for six years prior to the date you ask, who we shared it with, and why.
  • We will include all the disclosures except for the exceptions below. We’ll provide one accounting a year for free but will charge a reasonable, cost-based fee if you ask for another one within 12 months.
  • To make a request for accounting you may use this webform, following the instructions on the webform for other means of submission, or request a physical form in person then submit it using the instructions on the form.
  • An accounting does not include certain disclosures, for example, disclosures:
    • to carry out treatment, payment and health care operations;
    • for which Community Initiatives had a signed authorization;
    • of your PHI to you;
    • from a Community Initiatives facility directory;
    • for notifications for disaster relief purposes;
    • to persons involved in your care and persons acting on your behalf; or
    • not covered by the right to an accounting.

Get a copy of this privacy notice

You can ask for a paper copy of this notice at any time, even if you have agreed to receive the notice electronically. We will provide you with a paper copy promptly. Please direct requests for paper copies of this notice to hipaa@communityinitiatives.org.

Choose someone to act for you

  • If you have given someone medical power of attorney or if someone is your legal guardian, that person can exercise your rights and make choices about your PHI.
  • We will make sure the person has this authority and can act for you before we take any action.

File a complaint if you feel your rights are violated

  • You can complain if you feel we have violated your rights by contacting us using this webform, following the instructions on the webform for other means of submission, or requesting a HIPAA complaint form in person.
  • You can file a complaint with the U.S. Department of Health and Human Services Office for Civil Rights by sending a letter to 200 Independence Avenue, S.W., Washington, D.C. 20201, calling 1-877-696-6775, or visiting hhs.gov/ocr/privacy/hipaa/complaints/.
  • We will not retaliate against you for filing a complaint.

4. Your Choices

For certain PHI you can tell us your choices about what we share. If you have a clear preference for how we share your PHI in the situations described below, talk to us. Tell us what you want us to do, and we will follow your instructions.

In these cases, you have both the right and choice to tell us to:

  • Share PHI with your family, close friends, or others involved in your care
  • Share PHI in a disaster relief situation
  • Include your PHI in a hospital directory

If you are not able to tell us your preference, for example if you are unconscious, we may go ahead and share your PHI if we believe it is in your best interest. We may also share your PHI when needed to lessen a serious and imminent threat to health or safety.

In these cases we never share your PHI unless you give us written permission:

  • Marketing purposes
  • Sale of your PHI
  • Most sharing of psychotherapy notes

In the case of fundraising:

  • We may contact you for fundraising efforts, but you can tell us not to contact you again.

5. Our Responsibilities

Community Initiative has certain responsibilities pursuant to HIPAA. These generally include the following:

  • We are required by law to maintain the privacy and security of your PHI.
  • We will let you know promptly if a breach occurs that may have compromised the privacy or security of your PHI.
  • We must follow the duties and privacy practices described in this notice and give you a copy of it upon request.
  • We will not use or share your PHI other than as described here unless you tell us we can in writing. If you tell us we can, you may change your mind at any time. Let us know in writing if you change your mind.

For more information see: https://www.hhs.gov/ocr/privacy/hipaa/understanding/consumers/noticepp.html.

6. Our Uses and Disclosures

We typically use or share your PHI in the following ways.

Treating you

We can use your PHI and share it with other professionals who are treating you.

Running our organization

We can use and share your PHI to run the health care components of Community Initiatives, which engage in charitable and/or educational activities, improve your care, and contact you when necessary.

  1. For health care operations
    We may use and disclose your PHI for purposes like quality assessment and improvement, training and evaluation of health care professionals, licensing, accreditation, and determining costs of providing health care (like premiums and payments).
  2. To Business Associates
    We may contract with business associates to act on our behalf, like for payment and health care operations. Business Associates must agree to safeguard your PHI under Business Associate Agreements.
  3. For identity verification
    We may verify your identity using your PHI as necessary, and in compliance with the law.
  4. During communications with family and others when you are present
     A family member or other person involved in your care may be present when we are discussing your PHI with you (like if they accompany you to an appointment). If you don’t wish to discuss your PHI with them present, please tell us and we either won’t discuss your PHI, or will ask the person to leave.
  5. For communications with family and others when you are not present
    It may become necessary to disclose your PHI to a family member (or someone else involved in your care).  This can happen when there is an emergency, you are not present, or you lack the decision-making capacity to agree or object (like if you are incapacitated). If that happens, we will use our professional judgment to determine if disclosing your PHI is in your best interest. Regardless, we will limit the disclosure to PHI that is directly relevant to the situation. For a common example, someone might need to pick up a prescription for you.
  6. For disclosures to parents as personal representatives of minors
    Usually, we are allowed to disclose your minor child’s PHI to you. However, we are sometimes permitted (or required) by law to deny access to your minor child’s PHI. Examples include (i) when a minor who is 12 or older seeks care for a communicable disease or condition, and (ii) when minors have adult rights to make their own health care decisions (e.g. marriage or emancipation).

Billing for services

We can use and share your PHI to bill and get payment from health plans or other entities.  For instance, a Project may need to bill Medi-Cal (or your insurance provider) for services.  If you receive care from an outside provider through us, they may bill us first. Then, we use and disclose your PHI to determine how much, if any, of the bill we are responsible for paying.

How else can we use or share your PHI?

We are allowed or required to share your PHI in other ways – usually in ways that contribute to the public good, such as public health and research. We have to meet many conditions in the law before we can share your PHI for these purposes. For more information on how this sharing works, see: http://www.hhs.gov/ocr/privacy/hipaa/understanding/consumers/index.html.

  1. Help with public health and safety issues

    We can share PHI about you for certain situations such as:

    • Preventing disease.
    • Helping with product recalls.
    • Reporting adverse reactions to medications.
    • Reporting suspected abuse, neglect, or domestic violence: We may disclose PHI to the appropriate authority to report suspected child abuse or neglect or to identify suspected victims of abuse, neglect, or domestic violence
    • Preventing or reducing a serious threat to anyone’s health or safety.
    • Disclosure in case of disaster relief: We may disclose your name, city of residence, age, gender, and general condition to a public or private disaster relief organization to assist disaster relief efforts, unless you object at the time.
  2. Doing research
    As part of Community Initiatives’ charitable and/or educational activities, Projects may engage in research. Research of all kinds may involve the use or disclosure of your PHI. For instance, your PHI can generally be used or disclosed for research without your permission with the approval of an Institutional Review Board. An Institutional Review Board is a committee that is responsible for reviewing and approving human subjects research to protect the safety of the individuals and the confidentiality of their PHI.
  3. Comply with the law
    We will share PHI about you if state or federal laws require it, including with the Department of Health and Human Services if it wants to see that we’re complying with federal privacy law.
  4. Respond to organ and tissue donation requests
    We can share PHI about you with organ procurement organizations.
  5. Work with a medical examiner or funeral director
    We can share PHI with a coroner, medical examiner, or funeral director when an individual dies.
  6. Address workers’ compensation, law enforcement, and other government requests
    We can use or share PHI about you:
    • For workers’ compensation claims
    • For law enforcement purposes or with a law enforcement official, for example, to respond to a search warrant, report a crime on our premises or the premises of a Project, or help identify or locate someone.
    • With health oversight agencies for activities authorized by law
    • For special government functions such as military, national security, and presidential protective services
  7. Lawsuits and other legal disputes
    We may use and disclose PHI in responding to a court or administrative order, a subpoena, or a discovery request. We may also use and disclose PHI to the extent permitted by law without your authorization, for example, to defend a lawsuit or arbitration.

De-Identification

We, or a business associate with whom we have contracted, may use PHI to de-identify it in accordance with HIPAA standards and may further disclose the de-identified data to third parties in connection with our operations. Data that has been de-identified no longer constitutes PHI.

Authorization for Use and Disclosures

ALL OTHER USES AND DISCLOSURES OF YOUR PHI REQUIRE YOUR PRIOR WRITTEN AUTHORIZATION.

Except for those uses and disclosures described above, Community Initiatives will not use or disclose your PHI without your written authorization. Where such authorization is required, we will provide you with written HIPAA authorization forms for your review. Some examples of situations in which we may request your authorization for use or disclosure of PHI include:

  • Marketing: Our Projects may ask for your authorization in order to provide you with information about that Project’s products and services that you may be interested in purchasing or using. Marketing does not include any in-person communications you may have with your providers about products or services.
  • Sale of PHI: We may only sell your PHI if we received your prior written authorization to do so.
  • Psychotherapy Notes: On rare occasions, our Projects may ask for your authorization to use and disclose “psychotherapy notes”. Federal privacy law defines “psychotherapy notes” very specifically to mean notes made by a mental health professional recording conversations during private or group counseling sessions that are maintained separately from the rest of your medical record.

Where your authorization is required and you authorize us to use or disclose your PHI for some purpose, you may revoke that authorization by notifying us in writing at any time using the contact information of our Privacy Officer found in this Notice of Privacy Practices. Please note that any such revocation will not apply to any authorized use or disclosure of your PHI that took place before we received your revocation.

7. Changes to the Terms of this Notice

We can change the terms of this notice, so long as the changes are consistent with state and federal laws, and the changes will apply to all PHI we have about you. The new notice will be available upon request, in our office, and on our web site.

8. Community Initiatives' Privacy Officer

If you have concerns about Community Initiatives’ HIPAA related privacy practices, you may contact our Privacy Officer by email or mail using the following contact information:

Gayle Byrne
HIPAA Privacy Officer

Community Initiatives
1000 Broadway, Suite #480
Oakland, CA 94607

HIPAA@communityinitiatives.org